In regards to disclosure:
I have definitely discovered in talking more about infertility in my real life that there are many people I know who have some infertility issues themselves. I don't discuss the donor side of things due to my personal thoughts on that related to the girls but I make it no secret that IVF was a part of them getting here. Heck even when strangers ask me "were they a surprise?" or "what side of the family do twins run on?" I tell them "nope they weren't. We had some help" and if it goes further (it usually doesn't) I tell them it was IVF.
I have definitely discovered in talking more about infertility in my real life that there are many people I know who have some infertility issues themselves. I don't discuss the donor side of things due to my personal thoughts on that related to the girls but I make it no secret that IVF was a part of them getting here. Heck even when strangers ask me "were they a surprise?" or "what side of the family do twins run on?" I tell them "nope they weren't. We had some help" and if it goes further (it usually doesn't) I tell them it was IVF.
This happened over the past weekend. I went to a baby shower with my good friend L and the twins stayed home with Jeff. L likes to bring up to people that I have twins when they aren't in tow. I guess so I don't feel child-less or something when others bring their babies or talk baby. It doesn't bother me (her mentioning it). Anyway this shower was primarily people I didn't know with the exception of L and the mom-to-be. L brought up the twins and one of the older ladies said something like "I bet that was surprise". I said that it wasn't and that we had some help to which she gave a somewhat blank look so I added it was through in-vitro (ie IVF). Nothing more was really said other than how much work and how much fun it must be. Afterward L said she really was surprised and kind of thought I put myself out there for discussion (not that this was bad thing just I think she is a little protective in her eyes). She said that these people were so wrapped up in themselves though that nobody really cared to ask more. I didn't really think of it that way, although it could've been true. Honestly IVF and ART are so common place these days that I don't think most people bat an eyelash when they are mentioned.
IVF and ART in general:
Although common I also believe IVF and ART methods are grossly misunderstood or uneducated on. Unless you've been there you don't really know what goes into it. But of course most people also know not to ask such personal questions beyond those above or similar ones.
Sadly most people don't understand what assistance can be given prior to the "last resort" of IVF either. A family member has gradually been asking me more and more about our path to children. Nothing in depth really but more in regards to the possible success of it and the cost of it. I had an idea he was considering this as an option for he and his wife. He brought it up in that way the last time we talked and I asked if they had done any testing yet (it didn't sound like it) and suggested there were also other things to be done before IVF was considered generally. It sounded like this actually surprised him. Which surprised me. I assumed that most people even considering IVF had pursued or at least were aware of other less expensive options first. Of course I also assumed that when others pursued IVF that they were aware of national success rates of clinics being available and posted (I also discovered this assumption was incorrect when my best friend from high school told me their first clinic was one that doesn't report to the CDC or SART (not sure why) but it was the only one they knew of; when my friend's first IVF attempt with this clinic failed they were told they had 0% chance of conceiving. They have since gone on to get pregnant with twins twice and have 3 living children and 1 angel through IVF with ICSI ; bite it crappy clinic). Seriously?? I just feel like the medical community or the basic educational system is doing a great disservice to infertile couples. How can doctors diagnose a problem like infertility and then leave their patients to flounder in a diagnosis they don't know how to deal with or which routes are available to them. Why are the resources and information not given to people dealing with this?
When I was officially diagnosed with POF/POI by my ob/gyn I had only been married for a little over a month. But my doctor (bless her) suggested clinics in the area that could help us if we did decide to pursue things. She recommended one based on her own experience. So thank goodness I went to someone who had an idea of what it was like to go through infertility and what resources I might need. I had to research and find a POF/POI support group and here, a PVED support group (I hope it's still at this address...I know there have been some changes) and SART and clinic success rate sites myself but at least I was given a stepping stone for hope. It just infuriates me that some are not and don't know what is available, both for treatment of infertility and treatment of health and mental health problems that infertility can cause.
Goodness that turned into a tangent....ooooops (kind of). Anyway the point I am getting at is that IVF and ART are not things to be ashamed of in most circles and that when we keep being ashamed of them it just adds to that taboo (I was nervous and a little embarrassed to talk about them at first). And that we need to empower ourselves, others and expect the medical community to empower us also when it comes to infertility.


