I was pretty pro-helmet or at least pro-specialist evaluation. I kept feeling like Nolan was getting decent care for the torticollis but that head shape wasn't a huge concern for our therapist. So I was glad to have him seen and even happy to hear there was a recommendation beyond turning his head and increasing tummy time (we've been doing that for 4 months with only mild improvement). But of course then I start looking into helmets and worrying about the risks (if any) and if it will be successful (feeling more confident here). I also start seeing these adorable children with helmets on their heads. Gratefully they are all grinning from ear to ear so it doesn't seem too bad but still these cute little kids in these not so cute devices. Also, I think of a fellow mom friend who was sad about the cuddle time being different and not being able to kiss her son's head or nuzzle his hair as much during the therapy. That part is sad. Nolan's sisters will miss being able to ruffle his hair all the time. It is silly but just a little sad to check in with reality and realize Nolan will be stuck in a helmet 22-23 hours a day for 2-3 months. It makes me sad even though I know it's only short term and at least there is something we can do. Hoping he doesn't mind it and hoping it is a success.
Update: We went in on April 15th to have Nolan's scan/pictures taken of Nolan. They placed this cap on him and then took several pictures, using a high tech camera, around his head from different angles to get a 3D image. It was interesting and he was a good sport about it all. The helmet is supposed to be done within two weeks but due to our schedule they rushed it a couple days and we should get it on April 27th before heading off to visit my parents. I hope that he adjusts to it well.
 |
| Cap they put on him to take 3D pictures of his skull shape for helmet fitting |
 |
| Complete with stickers used to find center of his face, ears and top of head during imaging |
No comments:
Post a Comment